Skip to main content

Be Proud, Be Strong and remember its ok to talk. Period.


Its been a busy weekend for me! I was lucky this time and my plans weren't effected by my endo. 
So many times I have made plans weeks in advance and I have had to cancel them because my pain or period has been so bad I couldn't move or didn't have the energy to think about moving or leaving the house. I get so angry with my body when I have to break plans or cancel events I have been waiting months for. As I work a busy 40+ hour week I get very tired and my days off tend to be days of relaxation and recuperation. 
This weekend I spent with friends chilling out on friday evening and going to Cardiff to watch The Stereophonics perform on Saturday. It was an awesome couple of days but I was so tired and drained today I spent most of it in bed asleep. If I hadn't caught up today I would have been useless tomorrow. What would be an average weekend for most people has left me completely shattered and in agony. All day I have been in pain in so many places, sleep and painkillers have been my only salvation. I hurt in my legs, knees, feet, abdomen, lower back and ache pretty much every where else.  I had an amazing time and loved getting out in the sun but when I feel so bad the next day I do tend to ask myself "was it really worth it?"
Living with chronic pain is an emotional rollercoaster. You are constantly questioning your own decisions and making yourself the reason for your pain. This is simply not true. Wanting to be able to spend a weekend with friends and having a late night or two shouldn't be a hard decision to make. It shouldn't make you feel terrible the next day or make you scared that you may have to take time off work because of the backlash of pain. You should have the energy to go round a friends house and watch films until late. You should have the energy to drive 45 mins to see a band and spend the day wandering around the shops and bars. You should have the energy to have a successful career with a 40 hour week. 
The fact that we don't is not down to us. It is not because we are weak or damaged goods. It is not because we are emotionally unstable. It is not because we don't have the strength to over come the pain. It is simply because we use all our energy, strength and emotion fighting an illness so strong many people have lost against it. 
The fact that we continue to fight for a better, happier and enjoyable quality of life means we are STRONGER than your average person. We use our emotions and strength to keep fighting. To know when to rest and save our energy for the bigger fight we see on the horizon. 

Our chronic pain is not what defines us..Its our Emotional Strength that does.

Please don't be ashamed of this illness. Don't feel like you have to hide it. Don't see it as a sign of weakness. Be proud that you are an ENDOSISTER an ENDOSURVIVOR. Talk about it and show the world that Endometriosis is not an unspoken illness but an illness that targets women Strong enough to fight it!

Be Proud Of Your Strength.



Comments

Popular posts from this blog

When you are caught completely off guard!

Driving home singing along to the radio in the sunshine, enjoying the early finish and the chance to get home and have some fun. Then completely out of the blue, a pain unlike any other shoots right through me. A sharp pain that hits me deep inside. All of a sudden I have tears in my eyes and my legs won't stop shaking. I am less than 2 miles away from my house but I am so worried I won't make it there. I am stuck in traffic which means I have to clutch control when all I want to do is curl up in a ball with a hot water bottle and a ton of codeine in my system.  So I have a multiple choice option: 1. I pull over and wait for the pain to ease. Better to be safe than sorry. 2. Push through the pain and get home as fast as the traffic will allow me. 3. Pull over and call my Dad to come pick me up while crying down the phone. Option 3 is a no go as I know he will be out and unable to collect me. So do I pull over and wait for the pain to ease, which based on my histo

What if Wonder Woman had Fibromyalgia?

So I am a huge fan of superheroes. I love all the Marvel and DC shows and films and am loving the new Comic Cool revival that is happening. I was watching Wonder Woman (again) the other night and started to think to myself “What if Wonder Woman suffered from a chronic pain condition like Fibromyalgia?” or “What if Super-girl had Endometriosis?” what then would happen to the worlds they protect? It stands to reason that if these superheroes have heightened strength and powers then if they suffered from a chronic pain condition then the pain and symptoms would be heightened too. Now I know the purists out there will say they are Gods and Aliens and there DNA wouldn’t suffer from a human condition. Well you may be right, however think for a moment that they as a race can suffer from sickness just as we do. Allow yourself to believe that these could be very similar to our illness and conditions we suffer and strive to find cures for. If that were the case then its plausible they could b

Living with an invisible illness.

Living with an Invisible Illness? From the moment I was told by my GP that I may have endometriosis I was straight on the internet and advice forums. One of the most commonly used phrases I found was "living with an invisible illness".  When I first read this I felt like fist bumping the air and shouting YES! at the top of my voice. Suddenly I wasn't just the only one who felt like this. I had always felt like a bit of a whimp for being so rubbish that I couldn't just get on with my life during Painful monthly periods. I saw my friends and family get through it without any trouble or moaning and not having to even take paracetamol. I on the other hand was doubled over in pain, dosed up on codeine with a hot water bottle and bleeding so heavily sometimes that I couldn't move from the toilet. Why was I so different? Then the pain just carried on. It didn't matter where in my cycle I was and it was suddenly all around my abdomen, sharp and stabbing in my back